Jana's Summary of Days

Monday May 9^th

Summary by Jana:

3:00pm: unconscious

7:00pm: lucid – went home to Dale’s

-dazed, deep sleep

Tuesday May 10^th

Summariazed by Jana:

Wouldn’t wake up.

 – Hospital –

- Hallucinations: “I’m dying”

 - ICU

7:30pm: blessing

8:00pm: woke briefly

Midnight: semi-conscious

Wednesday May 11^th

Summary: - Jana’s voice:

1:00am – awake and lucid

3-5am: normal conversations. kept asking for bedpan and vomit bucket.

4:25am: bowel movement

7:30am: full breakfast

-Drs. In and out all day. Stressful possible prognosis

Noon: full lunch (still acting a little abnormal – dementia-like)

5:00pm: 500mg Levetiracetam (generic Keppra) - 1^st dose

-ate dinner

-family visited

9-10pm: Dr. Shoari (neurologist) visit and evaluation. Mom’s memory was amazing! Not Dementia!

 Diagnosis: Seizures.

9pm: 500mg Levetiracetam

10-11pm: She sat up and looked at me w/ scared eyes, twice.

1:00am: moved upstairs (out of ICU) – no response. Hospital staff thought she was just  sound asleep.

Thursday May 12^th

Summary  (by Jana):

8am: nurse tried to wake her. No response.

2ish: Mom woke Dad. Told Dad she couldn’t talk more, cause she was “dead.” (Really worried Dad)

3-? : Mom started responding while still “asleep;” 1^st w/ nods, then verbally (repetitively)

-bicycling, arm movements

 

Friday and Saturday May 13th and 14th

Friday, May 13:

2am: sat up, ripped out IV. Talked coherently, about terrifying dreams. “I thought I was dead.”

4-5am: in and out of sleep

5:30am asked for breakfast, but didn’t eat crackers that were brought.

-I asked for one-to-one care. An aide was “ordered” and would come so I could leave.

5:45am: looking much better. Wanting to go home

6:15: was happy to see Michael. Acted almost normal.

-ate breakfast and was dressed by the time Dale & Dad got there around 8am.

-went home.

-Denis said she started acting weird again that night.

Saturday, May 14:

-awoke briefly;  250mg Levetiracetam

-back into “coma”

8am: Dale took over care, began to research home health care to avoid returning to hospital

2ish: Mom went to bathroom

-active sleep all day and night.

Sunday May 15^th  250 mgs keppra sun 7 am and 500 mgs at 4 p.m.

Summary:

2:30am: bathroom; drank 8oz.

4ish: bathroom

6ish: woke, bathroom, rested

7ish am: 8oz water, breakfast, OJ, 250mg Levetiracetam, soda

Monday May 16th

Summary:

6:30am – 500mg Levetiracetam

6:45am – trance

7:45 – bicycling stage

10:30am – awake

3:00pm – tremor, fell asleep on floor, bicycling right away

5:00pm – woke, Levetiracetam: back to bicycling

10pm – quit bicycling, relaxed sleep, carried to bed, bathroom

11:30pm - awoke

Tuesday Morning May  17th

Summary by Jana

6:30am: 500mg Levetiracetam

5:30pm: 500mg Levetiracetam

6pm: dinner

6:30pm: grumpy, sat down, quiet

7pm: started seizure

10pm: was in active sleep when I got there

10:50pm: Mom woke up, “Jana, I’m back!” ½ glass water

11pm: went back to bed

Wednesday May 18^th -  Jana all day

5:30am: I heard Mom and Dad briefly talking.

7:00am: 500 mg. Levetiracetam (Generic Keppra)

8:00am: Dad “made” breakfast – cold cereal

8:20am: dazed in chair. I walked her to bed. Immediate deep sleep

8:30am: Active sleep. Legs “step”, right arm keeps two count rhythm, left hand picks left, then right ear.

3:40pm: bathroom, then still sleep on her side

5:00pm: up and lucid – 500mg Levetiracetam, 1 stool softener, 3 glasses water

 - sitting up in bed and lucid but very tired. She wanted to schedule the day.

6:00pm:  Breakfast. I couldn’t convince her it wasn’t morning. She ate waffles.

-normal all evening

-Dr. Shoari told Dale to increase “Keppra”  gradually to 750mg

10:00pm: Mom went to bed because I was tired.

Thursday, May 19, 2011 – Jana

7:05am: I woke Mom and gave her  562mg Levetiracetam, water and two bites muffin

7:00am: Mom came from bedroom and knew what day it is.

-Awesome, normal hour: Mom helped Dad make breakfast

8:00am: drowsy – nap.

11:00am: Mom’s hand became very shaky, she touched her fingers with her thumb on left hand. (Something she does in deep sleep). Began to circle right hand.

11:01am: definitely deep sleep. Circling motion w/ right hand, touching hair w/ left finger

12:05pm: she was trying to talk to me. I could not understand.

12:16pm: again tried to speak, body calmed movements slowed

12:19pm: started kicking rt. Leg and moving whole body again

12:27pm: said, “atonement”, pulled off covers

1:20pm: woke. “Boy am I worn out. I was riding a bicycle a whole time.”

-she said she was saying “hospital” when I couldn’t understand her – because she was “sick”

-she remembered eating Zoom for breakfast.

1:30: sat quietly on couch, watching TV

2:30: started to doze, Dad talked and woke her.